Dreamsicle Kids Foundation's mission is to be apart of the advancement of education awareness and support for Sickle Cell Disease (SCD) in Nevada. Dreamsickle Kids Foundation aims to #MakeSickleCellPopular in NV and beyond so that people across America will support finding a cure for this dibilating disease.
Nevada has many barriers when it comes to minority health. One major area is the health care and access to medical care and resources for those with SCD. Until the creation of Dreamsickle Kids Foundation , there was no active organization in Nevada to advocate for SCD. SCD is a rare genetic blood disorder that affects 100k Americans ,majority being of African decent. 1/12 African American babies are born with the Sickle Cell Trait making them likely to mate with another carrier thus making a child with SCD. This disease causes shorter lifespan, stroke, infections because of weakened immune system, unbearable pain which can lead to immobility for some.
As of 2018 there are no accurate numbers as to how many people actually have SCD or Sickle Cell Trait. The last numbers are from 2007 from CDC for NV which put it at 500. Dreamsickle plans to work to get a current count of people living in NV with SCD or SCT. The number is surely more than 500 with the risising cost of living in CA many people are relocating to NV. Many choose other states because of the poor health care management for people with SCD in NV.
Dreamsickle hosts charity walks and events in NV to raise awareness for SCD. We also participate in blood drives with Red Cross and have a good relationship with Be the Match in order to get people to register to be bone marrow donors as bone marrow transplant it currently one of the only cures for SCD. Blood transfusions help improve the quality of life for people living with SCD. Dreamsickle Kids is also on yhe committee to assist the only hematologist in NV that treats children with SCD in creating a Sickle Cell State Action Plan for NV to bring more health services to NV for the treatment of those with SCD. Dreamsickle has also been invited to assist a NV politician with drafting a Sickle Cell bill. Dreamsickle Kids hopes to foster long term change for the NV Sickle Cell population.
The foundation was created by myself, a single mom of 2 with one child who suffers from SCD. Since its creation in April 2018, most efforts to promote awareness and participate in events to further the SCD awareness agenda come from my own personal income. I belive Dreamsickle can do more and reach more people if we had more funding. Our ultimate goal is to have a brick and motar facility for families to come to for assistance,support ,and education.
- Dreamsickle Board
- Georgene Glass-President
- Jennifer Riddle- Director
- Jasmine Grafton-Director
- Nykollette Boyd -Executive Director
- Thank You in Advance for Your Support of our efforts to #MakeSickleCellPopular